Living with multiple sclerosis (MS) can present challenges, but treatment advancements are making it easier to manage the condition. Your MS treatment plan may include intravenous (IV) disease-modifying therapies (DMTs). Unlike prescription drugs that you’d inject or take by mouth at home, you’ll typically need to go to an infusion center to get infused DMTs. Finding the right place to get an infusion is a common topic of discussion on MyMSTeam.
“They closed the infusion center I’ve been going to,” one member wrote. Another said, “My first two infusions were at a hospital in San Francisco. I don’t want to go there again, so I’m waiting on authorization for a different one.”
Read on for three tips on how to find an infusion center where you can get your DMT medications.
Your neurology specialist or MS center should be your first point of contact when you’re looking for a place to receive your first infusion — or if you need to switch infusion centers. Explain your preferences to the prescribing doctor. These may include your ideal location, hours of operation, and other features.
Your doctor can share the pros and cons of different locations and share what others have said about their experiences at those centers. They might also suggest ways to feel more comfortable about getting an infusion.
The U.S. Food and Drug Administration (FDA) has approved several DMTs for treating MS via intravenous infusion, each of which is administered on a different timeline. This means the frequency of your infusion center visits will depend on the specific drug your neurologist prescribes.
You can reach out to the manufacturers of the drug you’re planning to take to find out where it’s administered near you.
Alemtuzumab, sold under the brand name Lemtrada, is administered over a five-day period, followed by another three-day round a year later. To find a list of health care facilities that administer this medication, the drug’s manufacturer (Sanofi) offers an online Lemtrada facility locator.
Mitoxantrone is given once every three months. The drug’s manufacturer, Pfizer, provides details and contact phone numbers online.
Sold under the brand name Tysabri, natalizumab is given every four weeks. Biogen, which manufactures this medication, provides an online locator where you can look for an infusion center near you. You can also find information about taking Tyruko, a biosimilar of natalizumab, through its manufacturer Sandoz.
Ocrelizumab is sold as Ocrevus and is taken as an infusion once every six months. You can check information from the drug manufacturer (Genentech) about how to find an infusion center near you.
Sold as Briumvi, ublituximab is administered once every 24 weeks. TG Therapeutics, which manufactures ublituximab, provides a resource website with patient care information and contact numbers so you can find an infusion site near you.
Several organizations provide resources for people with MS who are interested in finding DMT infusion centers. You can refer to the organizations listed below, among others, to locate a medication administration site near you.
If you need to travel to an infusion center that isn’t near your home, keep these tips in mind before you go.
Read more about copay assistance and MS infusion costs.
Once you have found potential MS infusion centers, you’ll want to figure out which one is the best fit. You can check online reviews, speak with the center’s staff or other patients, and make sure they offer the specific type of infusion you need.
MyMSTeam is the social network for people living with MS and their loved ones. On MyMSTeam, more than 215,000 members come together to ask questions, give advice, and share their stories with others who understand life with MS.
Have you received an infusion treatment for MS? Do you have any tips for finding an infusion center? Share your experience in the comments below or on MyMSTeam. Your story may help others learn more about infusions for MS.
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Infusion DMT's are not cheap, check with your insurance provider to find a in-network infusion center if at all possible so you aren't surprised by increased out of pocket costs, and for gosh sakes… read more
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